IN response to the Seven article "I'm not going to give up" (October 18), I'd like to comment about HNPP (Hereditary Neuropathy With Liability To Pressure Palsies ) and disability.

I'd like to thank Jessica Kellgren-Hayes for her candid account of HNPP and how it affects her.

I understand only too well, having two known sufferers in my family, how difficult it is to be taken seriously and the unsympathetic attitudes that can occur around disabilities which aren't obvious to the naked eye.

My partner and I have been campaigning for eight years to raise awareness of this condition and access to accredited information.

During this time, we approached both the Muscular Dystrophy Campaign and Charcot Marie Tooth UK, which have subsequently provided information on HNPP.

We approached these groups as the number of HNPP sufferers is relatively small (though, I suspect, underestimated ) and needed large umbrella organisations to provide support, information and research into this condition, which is sometimes referred to as a Hereditary Motor Sensory Neuropathy (HMSN).

For further information from Charcot Marie Tooth UK, visit cmt.org.uk, email secretary@cmt.org.uk, call 0800 6526316 or write to PO Box 5089, Christchurch, BH23 7ZX.

For more information from Muscular Dystrophy Campaign, visit www.muscular-dystrophy.org, call freephone 0800 652 6352 or write to 61 Southwark Street, London, SE1 0HL.

I wish Jessica Kellgren-Hayes every success for the future.

Felicity Barlow, by email.