TV star talks to students about genetic disorders
A STAR of a television series examining the extremes of discrimination visited Fairfield High School in Horfield to talk about his experiences of living with a genetic disorder.
Adam Pearson, a presenter on Channel 4's Beauty and the Beast - The Ugly Face of Prejudice, talked to students about neurofibromatosis, the genetic disorder he has which causes excess body tissue to grow on nerve endings.
The growths caused by neurofibromatosis can occur anywhere on the human body, although in Mr Pearson's case it has occurred predominantly on his face.
Mr Pearson also spoke about the upcoming Jeans for Genes Day, of which he is patron.
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He was promoting the charity's new free educational resources for teachers at its website www.genesareus.org, which helps school children learn about and understand genetic diseases.
The resources bring genetics to life in the classroom, where pupils can meet children with genetic disorders through short films and classroom activities that are targeted at key areas of the national curriculum.
One in 25 children are born in the UK with a genetic disorder or genetic birth defect – more than 30,000 babies born each year. There are more than 6,000 genetic disorders and although individually they are rare, collectively they are the biggest killer of children aged 14 and under.
Jeans for Genes Day 2012 takes place on Friday, October 5, and raises money for Genetic Disorders UK, the charity that aims to change the world for children with genetic disorders. Funds raised will go to the vital care and support they need.
To raise money on the day, millions of people across the UK will make a small donation to wear their jeans to work and to school. The day raises around £3 million each year.
Since it became a national appeal in 1996, Jeans for Genes has raised more than £33 mil- lion for research and the care of children who are affected by genetic disorders.