Decision not to fund life-saving cancer drugs on NHS causes outrage
Pensioner Richard Eckley rose at 6.30am and worked on the
family farm until the sun went down, as he has done practically
-

Angry: Richard Eckley
every day of his adult life.
But the grandfather, 69, could only do so because he is
one of the lucky few to have won a funding battle for the drug
Sutent that keeps his advanced kidney cancer at bay.
Yesterday,THU the shocked farmer took time out from preparing
his cattle for market to blast a decision that will deny other
patients the same drug that has allowed him vital extra
time with his family.
Mr Eckley joined the outcry caused by the decision by the
National Institute for Clinical Excellence (Nice) not approve
NHS funding for four drugs used to prolong the life of patients
with advanced forms of kidney cancer.
He said: “It’s absolutely horrifying. It’s unbelievable that,
in 2008, desperately ill people are being denied treatment that
can help them. It makes me very, very angry.”
The Herefordshire farmer started paying about £4,000 a month
for Sutent out of his own pocket in January this year after
doctors at Cheltenham General Hospital told him it could help
him live longer.
Paying for the drugs also made him liable to pay for the cost
of NHS treatment. But, two weeks ago, his local health chiefs
agreed to pay his bill in full after hearing medics describe
how he had made amazing progress.
Mr Eckley said his tumour has now virtually shrunk to nothing
and most days he is fit enough work from dawn until dusk on the
family’s 250-acre farm at Glasbury-on-Wye.
His solicitor has assured him Nice’s decision yesterday not
pay between £23,000 and £30,000 a year per patient for the
radical cancer drugs will not affect his case. However, his
family are angry on behalf of other sufferers.
His wife Barbara Eckley said: “Without Sutent, Richard would
be very ill and he could not cope with sitting around all day.
As far as he is concerned, if he can’t work, he may as well be
dead. Our hearts bleed for all those people out there who have
been given a death sentence today.
“It’s disgusting. It’s all wrong.
“The NHS can find the money to fund treatment for obese people
who could help themselves with diet and exercise, but they tell
cancer sufferers that these new drugs are too dear.”
The drugs Avastin (bevacizumab), Nexavar (sorafenib), Sutent
(sunitinib) and Torisel (temsirolimus) were found by Nice to
provide “significant gains” in survival rates.
But news that they will not be funded because they do not meet
Nice’s criteria for “cost-effectiveness” has caused uproar and
calls for the system to be changed.
More than 7,000 people are diagnosed with kidney cancer every
year, while 1,700 have incurable renal cell carcinoma that has
spread from the initial tumour.
Officially, Nice admits the drugs can prolong life by about
four or five months, but they are routinely denied to
patients.
In October 2007, Geraldine Frost, from Coleford, died at the
age of 44 after losing her fight to win Sutent from health
chiefs in Gloucestershire. Meanwhile, Jack Rosser, 56, is
currently fighting to get health bosses in South
Gloucestershire to pay for Sutent so he can have more time with
his baby daughter, Emma. He was diagnosed with cancer of the
kidney three days after she was born last July.
Former Yeovil Town Football Club captain Paul Smith, 58, was
one of the lucky ones to win his fight for the drug sorafenib
after doctors in Bristol said he was special case.
Patients can be prescribed interferon, but many cannot
tolerate it. Yesterday, Professor John Wagstaff, from the South
Wales Cancer Institute, said about 75 per cent of patients did
not gain any real benefit from the NHS-approved drug.
Broadcaster James Whale, 49, who was diagnosed with kidney
cancer in 2000, accused Nice of being “barbaric” for
denying cancer patients the latest generation of drugs that are
available abroad.
But Professor Peter Littlejohns, clinical and public health
director at Nice, said although he could understand the concern
and distress caused by the decision, the NHS could not
afford to fund all new treatments. Bringing the price down
would be the best way to make the drugs available on the NHS,
he said.
“The evidence has shown that, although these treatments are
clinically effective, they are not a cost-effective use of NHS
resources.
“If these treatments were provided on the NHS other patients
would lose out on treatments that are both clinically and cost
effective.”
The draft guidelines for England and Wales, which are subject
to appeal, recommend people already on the drugs should be able
continue their treatment.











2 Comments
by Charles Henry, Somerset
Saturday, August 09 2008, 7:54AM
“Always the sycophant (toady) Graham Forsyth has to defend 'his' discredited government at all cost; but more particularly when a farmer is involved.
Government spending on advertising, marketing and public relations almost tripled from £111m in 1997 to £322m in 2006, much of the money has been spent on informing the general public about 'Flagship Policies'! . .Wonderful!!
£Billions have been wasted on all manner of things. . Identity Cards, CCTV Cameras, aborted computerization, Range Rovers for the Police, and Limousines for Government Ministers. . . I had a CF Bedford van back in the 70's with a Twin-Choke Weber Carburettor that was faster than a Triumph Spifire sports car!! . Please someone tell me! . Why do the police need £50,000 Range Rovers???”
by Graham Forsyth, Somerset
Friday, August 08 2008, 7:57PM
“They are only a finite amount of funds avaliable. Unless we pay more into the NHS this will always be a problem.
If NICE dont decide who will, the NHS Trust or a Civil Servant in Whitehall or worst a politician.”