Bristol dad's plea: Let me see my daughter grow

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Tuesday, July 22, 2008
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This is Bristol

A TERMINALLY-ill father who needs an unapproved cancer drug is begging health bosses to let him live to see his daughter's first day at school.

Jack Rosser was diagnosed with cancer of the kidney three days after his daughter, Emma, was born last July.

He says that a drug which could prolong his life for up to five years is his only hope of seeing his daughter walk on her own, talk or even spend her first day at school.

Mr Rosser, of Kingswood, has been told by his consultant that Sutent, which stops cancer cells growing, could prolong his life by up to five years and would buy him more time with his daughter.

Sutent does not have approval from the National Institute for Clinical Excellence (NICE), so health bosses are not obliged to prescribe it on the NHS.

Earlier this month the Evening Post told how another cancer patient, 55-year-old Gary Humphries, from Knowle, won a last-ditch appeal hearing persuading Bristol Primary Care Trust to pay for him to be prescribed Sutent.

But South Gloucestershire PCT has turned down Mr Rosser's application for the drug at an exceptional funding panel.

The 56-year-old is now preparing an appeal against the decision.

“When I heard they were not going to give me Sutent I broke down in tears.

“I've been told that in appealing I need to open up my heart to them, but I want to know just what they want from me.

“I thought the information I had already given them about the pain I've gone through and what I have suffered was sufficient enough.”

Mr Rosser, who served in the Royal Navy for nine years, was diagnosed after he went to his doctor about what he believed was “a popped rib”.

But when he went for a scan a tumour was discovered in his kidney and it was found that the pains he was suffering were the result of the cancer spreading to his bones.

He was originally told that he may have just months to live, but after having the kidney and corresponding adrenal gland removed he was told that he could live a few years longer.

Mr Rosser tried the drug Interferon but he suffered many side- effects and lost weight.

He said: “When I think how all my life I have always kept myself fit, running marathons for charity and have worked for 40 years and paid my national insurance, I would have thought I would be able to get the drugs I need now.

“I want some quality of life and longer to spend with my beautiful little girl and my wife.”

As well as one-year-old Emma, Mr Rosser has a 26-year-old daughter, Carly, and is a stepfather to his wife Jenny's two teenage sons, Sam and Daniel.

Mr Rosser's family have written letters to be included in his appeal, which is being put together with the help of Kate Spall, who set up the Pamela Northcott Fund in her mother's name after winning a battle to obtain kidney cancer drugs to prolong her life.

Kingswood MP Roger Berry has also written to the PCT on Mr Rosser's behalf.

A spokeswoman for South Gloucestershire PCT said: “A number of drugs are not routinely funded by the NHS. However, the PCT has a process in place to offer exceptional funding for treatments depending on the individual's circumstances.

“There is also an appeal process to challenge any decision made by the PCT if the patient feels that due process was not followed, or there is further information that could demonstrate an exceptional need for treatment above others in a similar situation.”

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8 Comments

  • Profile image for This is Bristol

    by David, Horfield

    Wednesday, July 23 2008, 8:49AM

    “Tip, how much are you personally willing to pay for the possibility of Jack getting a longer life? That's what it comes down to in the end. How much extra are you, I and everyone else willing to pay so that someone else can have access to an expensive treatment?
    Also, is it even going to work?

    Martin, I completely agree with you. It seems very peculiar that you cannot be given a cheaper drug when a more expensive one is not working - it sounds like a win-win situation.”

  • Profile image for This is Bristol

    by Tip, London

    Tuesday, July 22 2008, 5:37PM

    “This persons life is very important to his family and he should be given the any treatment that might extend his life. The comment about mosquito nets is not relevant. Money has been thrown at many third world countries to no avail. We should be looking after our own people first and foremost.”

  • Profile image for This is Bristol

    by kate corwyn, long ashton

    Tuesday, July 22 2008, 2:18PM

    “So, I, you think that the life of one person is more important than the lives of many thousands? Or is it because those mosquito nets are going to people whose skin colour differs from your own?”

  • Profile image for This is Bristol

    by Kay, Bradley Stoke

    Tuesday, July 22 2008, 2:16PM

    “Explain please why the NHS can afford to fund stuff like IVF and free contraception but can not provide cancer patients with the gift of life.
    Perhaps if the government stopped poughing money into hairbrained schemes and illegal wars there would be more money for these drugs in the NHS pot.
    And don't get me started on the obscene profits the drugs companies are making...!”

  • Profile image for This is Bristol

    by Martin Moss, Kingswood, Bristol

    Tuesday, July 22 2008, 12:28PM

    “Like Jack Rosser, I to went through the excectional funding panel and the appeal which I attended in person at South Glos PCT. I suffer from Chronic Myeloid Leukemia, and the ttreatment that I am Taking at the moment is not working very well, my specialist advised me that I should take a drug called Dasatinib, which has not been cleared by the NICE, it has been with NICE for eighteen months and they still have not given it the go ahead, but this drug is free on the NHS in Scotland and in Wales, and other thing the Dasatinib drug is £1200.00 cheaper per month than the drug I take at the moment.
    My specialist has now asked the PCT for South Glos for another drug for me called Nilotinib and I have to go through all the rigmirol again, to get knocked back again. Like Jack I served in the Royal Marines for 9 years and done active service, but when it comes to getting drugs from the NHS they do not count any body who served Queen and country. I hope that Jack could get in touch with me”

  • Profile image for This is Bristol

    by Graeme, Knowle

    Tuesday, July 22 2008, 11:13AM

    “The decision can't be based on whole cost of treatment - it must surely be based on the extra cost of this treatment over and above the approved method. These cases go to show that the so called extra money from the government is not going in all the right places. There should be money available to fund the new and successful drug treatments when the tried and tested don't work for the few sufferers”

  • Profile image for This is Bristol

    by l, bristol

    Tuesday, July 22 2008, 11:06AM

    “everyone should be entitled to medication to help their illness. If money is the object, then maybe take some back from the millions that will be going abroad for mosquiito nets. Charity begins at home for people like Jack.”

  • Profile image for This is Bristol

    by David, Horfield

    Tuesday, July 22 2008, 8:58AM

    “In cases like this it would be interesting to know WHY they turned it down. Is it because there is only a very small chance that it would work? or is it just because it is too expensive?
    Are we willing to pay for it? Think of how many of these sorts of drugs we could pay for if we just put 1 penny more on tax.”

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