Alastair Hignell: How MS has changed by life
It was the bleakest of times in Alastair Hignell's life. A
consultant had just confirmed the diagnosis he had been
-
Alastair Hignell and his wife Jeannie
dreading. He did, indeed, have multiple sclerosis.
The date was January 8, 1999.
"You don't forget a date like that," he says.
Many might have wallowed in despair. Alastair, though, had a
rugby game to cover for BBC Radio Five Live that weekend. Then
he went home. Alone.
"My wife Jeannie was away working at the time so I had this
news all to myself for a weekend," he recalls.
"So, when I got back after covering the game, I read up as
much as I could about MS, and sort of plodded on until Jeannie
returned.
"I met her at the front door with a bunch of flowers and
said 'I've got some news for you...'
"I remember her saying 'It's not your MS, it's OURS'."
More than nine years on Alastair has finally had to retire
from radio.
"I just knew I couldn't do the demanding job the way I had
done it and the way it should be done," he said.
"I knew that when you get to a big event, like the World
Cup, say, you have to be on the road for seven weeks, 24 hours
a day, and you can get called on at any time. I just found I
didn't have enough reserves of energy to do that."
He called it a day on May 31 this year, covering the
Guinness Premiership final between Wasps and Leicester.
"I had made the decision after the World Cup and wanted to
come to a nice climactic finish."
As any English rugby fan will know, his final game was very
special. Laurence Dallaglio, triumphant as captain of the
winning Wasps side, paid tribute to Alastair's indomitable
spirit by dedicating the game to him.
Reflecting on that moment, Alastair said: "The occasion was
emotional enough without that. I was joking with Laurence
before the game and he knew it was my last game. I am still
amazed he should say the things he did.
"When I realised I had got the progressive form of MS I
spoke to my boss at the BBC and asked what was the best thing
to do. The best way was deemed to be to take medical
retirement.
"I want to do some work, though, and I am overjoyed that I
have got this new column. It will give me something to get my
teeth into.
"I would like to move into the field of motivational
speaking, examining life-changing experiences, seeing how my
own experience can be relevant in other spheres. I am also
looking at the idea of an autobiography."
Alastair is 52. He and Jeannie have two sons, Adam, 26, and
Dan, 25.
Sitting in the garden of their home, overlooking a panoramic
sweep of the Stroud valleys, we go over old ground. He talks
with a passion about the illness.
"I underwent a hip operation in 1997 and was attempting to
get back in trim but was concerned about my right leg, I had
something called 'foot drop'. It didn't lift up and didn't
quite work. There were problems with my finger and thumb, too,
no feeling.
"Then I had a problem with the arm wobbling. I couldn't keep
the microphone still. I spilled wine on the carpet."
A succession of tests took place, ending with an MRI scan.
It was after that one Alastair heard the first mention of
multiple sclerosis.
"A specialist said to me that I'd 'probably' got it. I had
sort of heard about it and thought it didn't strike at people
so much who were over 40 and sort of contented myself with
that. I had a cousin who had MS but who had then remained clear
of attacks. However, the wife of a very good friend had MS and
died."
At this point in our conversation Alastair emphasises that
"you don't die from MS, you die with MS!"
How has it progressed?
"For the vast majority of people it's a case of relapse and
remitting with the disease. You have an attack when something
goes wrong, a fairly severe bunch of symptoms which knocks you
flat and you take to your bed. Then you recover about 95 per
cent.
"The worst kind is the primary progressive when you are on a
steep slope of decline. I am on secondary progressive which
means I'm on a slope of decline but I try to make it as gentle
a slope as possible and not go down at any great rate.
"But I am gradually getting worse. For example, with the
energy levels which forced me to give up my job. I don't have
as much energy resilience, reserves of stamina, to do the job
as I wanted to do it.
"My initial reaction back in 1999 was 'I am going to get
fitter, stronger and beat this thing' but it was a bit more
implacable than that.
"I can't now do a lot of things I could back then. I am
finding it very difficult to walk any distance, climb stairs,
write with my right hand (I am right handed). I'm on a slope
that's gone downhill.
"I've got used to using a stick (I didn't use one before
2001), then the mobility scooter. I have three different sorts
of those, including the off-road Ferrari," he laughs.
"I have got used to using different things to help me
physically because I am worse than I was. My right arm and
right leg don't work very well but I am having lots of phsyio
and using things like the 'Power Plate,' a vibration exercise
machine which does me a lot of good.
Initially Alastair was told there was a drug, Beta
Interferon, which modifies the disease – nothing cures it. But
health officials were reluctant, because of the postcode
lottery, to give it him. Eventually he had to pay privately to
obtain it.
He said: "I took it for about two years, a quite painful
injection three times a week. The side effects were awful. It
felt as if I had flu three times a week and felt terrible, I
plugged away thinking it may do me some good but it was making
my life a misery, so I stopped and took more of a self-help
route, upping the physio."
That's when he availed himself of the treatments available
at the MS Centre in Nailsea. At the time he lived in
Bristol.
"I went to Nailsea every Monday for five years and gradually
got to manage my symptoms, used their oxygen chamber, the
physio, aromatherapy. The combination of all those treatments
made a bit of a difference and enabled me to do the job as long
as I did.
"Since moving to Stroud there's not quite the same
facilities so what I am doing now is go to Phsyability, a
treatment centre here for nerve damaged patients and we do
exercising and massaging. But the Power Plate is also terrific
for me, two or three sessions a week help me feel much better,
and help with balance and coordination."
A decade on, Alastair has a view about his illness which
many might find surprising.
"I owe an awful lot to MS," he says.
"Yes, people might find that surprising, but I've met some
fantastic people and been exposed to some extraordinary amounts
of generosity, goodness and kindness. A great love, if you
like, amongst people. That's something that, maybe, if I'd been
plugging along in the rat race, being a journalist and trying
to get to the top of my job, I might not have been exposed to.
It has made me learn a lot of things about myself as well.
"Initially you find yourself being incredibly competitive in
fighting the disease.
"You are in denial, feel guilty and you expend a lot of
energy on negative stuff.
"It has been an interesting personal journey to get beyond
that and it's been accepting I have got something I am going to
have for the rest of my life, then working out ways of living
with it and making it work for me."
Is Alastair Hignell saying he's a better bloke for having
MS?
"Yes, definitely. It has opened me up a lot more. My
upbringing was very public school and I was not a very openly
emotional person.
"I am now more in touch with my feelings."
Watch out for Alastair Hignell's column later this week.







Comments
by Shirl, Emersons Green
Wednesday, August 27 2008, 8:42AM
“This is an inspirational story for both those who have MS (encouraging) and those who do not (informative). It is always gratifying when those in the public eye can attract public attention to their ill-health and make it a positive experience - thank you for that, Alistair.
I too have MS. I too used to be a writer but recently gave it up as my MS has progressed rather fast. However, I wish you well with all you do in the journalistic field - make it your own story, one that is ongoing and continually inspirational.”