Adults needed for Bristol cleft lip study
Adults with cleft are helping researchers in Bristol to better understand the impact it has on their lives.
The aim of the study at UWE Bristol is to help improve the support available to people with a cleft lip and/or palate.
Nicola Stock of the university's Centre for Appearance Research is looking for more people to take part in the study.
Growing up with a cleft lip or palate can pose challenges for those affected and their families and Miss Stock said that understanding the needs of adults is crucial in ensuring the right support is available throughout life, and for on-going service improvement.
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Her research is being carried out with the support of The Cleft lip and Palate Association (CLAPA).
Miss Stock is looking for adults with cleft who may or may not be parents, and whose children may or may not have cleft.
She said: "Cleft lip and/or palate is the most common craniofacial condition, affecting one in 700 infants per year in the UK.
"I have been working in the area of cleft for three years now, and have seen an increase in research investigating the impact of cleft on parents and children. However, the views and experiences of adults with the condition have, until now, been neglected.
"Adults choosing to have their own family must also face the possibility of their own children being born with a cleft, another area of research which has previously been overlooked. I am therefore keen to speak to adults who have had their own children, particularly if their children were also born with a cleft."
Participants would be interviewed by Miss Stock, probably by phone.
To find out more about the research contactNicola2.Stock@uwe.ac.uk.
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